Celiac Disease Foundation Advocacy
The Celiac Disease Foundation supports advocacy efforts to increase awareness of this autoimmune disease. Specifically, the Foundation works to advance legislation that will support and advance research into celiac disease. The Congressional Celiac Disease Caucus is one of the highest priorities of the Foundation’s advocacy efforts. With 27 members, the Caucus is an important platform to elevate the voice of celiac patients.
The iCureCeliac (r) celiac disease foundation is a patient-powered research network. The foundation has been collecting patient insights and health data since January 2016. The website allows patients to fill out surveys on a recurring basis, and you can also opt to receive these surveys by email. The surveys are free and anonymous, and you have the option to complete them as little or as much as you like.
The CDF works with physicians and researchers to develop more effective treatments. They also recruit patients for research studies and clinical trials. They partner with the North American Society for the Study of Celiac Disease. They also hold an annual conference and expo, and host a nationwide network of support groups. The foundation also provides resources for patients with celiac disease, including a patient registry.
CD is an autoimmune disorder, affecting 0.7% of the population. It is caused by the immune system activating against gluten in the gut. While the symptoms of the disease vary by age and severity, the only current treatment is strict avoidance of gluten in the diet. However, avoiding gluten can be costly, stressful, and difficult to maintain.
In a study by the Celiac Disease Foundation and Columbia University, a probiotic treatment for celiac disease was found to be effective. The study was recognized as an Outstanding Poster Presentation at the 2020 Annual Scientific Meeting of the American College of Gastroenterology. This research was made possible by the iCureCeliac patient registry.
The iCureCeliac(r). celiac disease foundation strives to raise awareness about the disease and develop more effective treatments. The organization provides a free and confidential patient registry. Members of Congress can share information with one another, and learn about the latest research on celiac disease.
The Celiac Disease Foundation is hosting its annual National Conference this spring, and there are many reasons to attend. The conference is the largest gathering of its kind in the United States and features world-renowned experts. Speakers will include Dr. Alessio Fasano, author of Gluten Freedom, and Dr. John Zone, chair of dermatology at the University of Utah. The conference will also feature a gluten-free food expo.
The Celiac Disease Foundation works to raise awareness and funds for research into celiac disease. It also sponsors several events each year to spread information about celiac disease. These events include the National Conference and Gluten Free EXPO, which attracts over 3,500 attendees and more than 100 companies.
The Celiac Disease Foundation is a 501(c)(3) nonprofit organization devoted to improving the lives of those affected by celiac disease. The CDF funds education and research initiatives to increase the rate of diagnosis, improve treatments, and find a cure. The foundation also hosts local support groups and offers services to celiac disease patients.
A gluten-free diet is essential to people living with celiac disease. People with the disease should avoid gluten as much as possible to avoid pain and damage to the small intestine. They should also avoid eating processed foods like white bread and cakes. In addition to gluten-free diets, the Celiac Disease Foundation encourages advocates to contact their congressman and advocate for celiac disease research funding.
The Celiac Disease Foundation has been working on developing a consensus roadmap to improve the understanding of coeliac disease. The roadmap was developed with the help of leading experts in the field, government officials, and patient support groups across North America. The Roadmap summarizes recent advances in coeliac disease research and describes a consensus-based approach to addressing gaps and opportunities in diagnosis and treatment.
Celiac disease affects around 1% of the American population – one out of every 133 people. Unfortunately, many people with celiac disease are misdiagnosed. The goal of the foundation is to increase awareness of the disease and to accelerate its diagnosis. The organization also supports patient advocacy and participates in national celiac awareness month.
The Celiac Disease Foundation is hosting a Gluten-free EXPO on June 8 and 9 in Pasadena, California. This event celebrates gluten-free foods and offers consumers the chance to sample new products before they are released into stores. This event features over 100 exhibitors offering products and services for those with gluten-free needs.
The event includes a free Skate to raise awareness and funds for research. In addition, hundreds of gluten-free food products are being sampled. The Celiac Disease Foundation’s Skate event features samples from 100 of the world’s leading gluten-free companies. In addition, attendees can receive goody bags and coupons.
Another highlight of the event will be a panel discussion about inadvertent gluten ingestion. While most people are careful not to consume gluten, this can still happen. The panel discussion is titled “Staying Safely Gluten-free at Home and Beyond.” Lola O’Rourke, RDN, will moderate the session.
Attendees will learn how to identify safe gluten-free products. The event will also feature the Gluten Intolerance Group, the largest nonprofit advocacy organization for gluten-free eating and awareness. This organization certifies more than 60,000 gluten-free products worldwide. Also on the show floor, the Gluten-Free Certification Organization (GFCO) program will be on display.
The Celiac Disease Foundation has been working with researchers and physicians to advance celiac disease research. Through iCureCeliac, the foundation provides patient data for clinical trials and research studies. It also partners with the North American Society for the Study of Celiac Disease to support the annual Young Investigator Award. It also holds the largest annual patient conference in the United States, with presentations from world-renowned celiac disease experts. In addition, the Celiac Disease Foundation sponsors local support groups and services for people living with celiac disease.
Celiac disease is an autoimmune condition that damages the digestive system and causes widespread inflammation in the body. The disease can also cause emotional and psychological problems for sufferers.
Patient advocacy summit
If you want to make a difference in the world, join the Celiac Disease Foundation Patient Advocacy Summit. Attendees will hear from government officials, patient advocates, and more, all about the importance of educating lawmakers and making the celiac disease community heard. The summit provides professional training for advocates to effectively engage with members of Congress. It also offers the opportunity to network with other advocacy ambassadors.
In 2021, the Celiac Disease Foundation moved its annual summit to a virtual platform. By doing so, thousands of people were able to learn about the pandemic and connect with the organization through recorded presentations. In addition, the organization was able to listen to feedback from those who could not attend the event. The organization plans to continue offering Summits in this format. The next one will be held virtually in 2022.
In addition to educating the community about celiac disease, the summit will equip the community with the tools needed to advocate for legislation. Among the initiatives that need support include federal funding for biomedical research, establishing gluten-free labeling guidelines for prescription medicines, and ensuring that Medicare covers visits to dietitians for newly diagnosed patients.
The Celiac Disease Foundation is also working to ensure that federal funding is directed to the appropriate research for celiac disease. In April 2019, the foundation testified before the House Appropriations Subcommittee, and has worked to ensure language is included in the FY2020 and FY2021 Appropriations reports directing the NIH to dedicate adequate research funding for celiac disease. The summit will also feature presentations from two renowned physicians: Joseph A. Murray, MD, and Ritu Verma, MD.
Attendees will learn about the latest research findings and how these findings will impact the lives of celiac disease patients. The summit also features panelists with medical and public health experience. Some of the speakers are the Taplin Endowed Chair for Celiac Disease at Columbia University and President-Elect of the Society for the Study of Celiac Disease.